Wednesday, August 4, 2010

The Sun Shine on a Rainy Day







There is a new theme in my life. Happiness. Who would have thought? I most certainly didn't. After 4 1/2 long hard years I have come to place of happiness that I did not believe was within my reach.

Today, Carter was a guest client at Next Step Orthotics & Prosthetics, Inc. http://nextstepoandp.com/ for a tour of the facility along with demonstrations. Carter, My father and I met John Stephen, Republican candidate for Governor. Mr. Stephen asked Carter if he could have his picture taken with him. Within seconds Carter had posed himself, arm around Mr. Stephen, prosthetic leg over Mr. Stephen's leg, (to make sure of course the camera was able to get a good angle of his prosthetic) and head resting on Mr. Stephen's shoulder ever so perfectly grinning his best smile! A moment of amazement flows through me and I realize that my son is on his way to making a difference in this world.

Throughout the afternoon, Matthew J. Albuquerque, CPO, owner and vice president of Next Step O&P referred to some of the challenges that our family has faced and overcome and everything came to fruition for me. The growth that has come of this heartache was being shed in a new light. For once, I did not see the rough road ahead of us, I saw the rough road behind us. Seeing Carter impact peoples lives right in front of my very eyes was amazing and surreal.

His independence and ability to socialize with people of all ages is something very special. Without the amazing prosthetics that Next Step makes for Carter he would not have the confidence he exudes every day. During a demonstration in the prosthetic and orthotic fabrication room we were able to see the different steps it takes to create a prosthetic limb. Each client is given the oppurtunity to make the prosthetic their own by choosing how it will look cosmetically. An extra that Carter gets on his prosthetic is a fabric inlay of his choice, of course he has chose spongebob for his last two legs. Not only does this involve the client in the process it gives them something far more important, Pride and Confidence. I shared with the group that for Carter the fabric is not just a fabric, it is something far more important. On his 1st day of pre-school he was confident and excited to show off his spongebob leggy and it opened an oppurtunity for the other children to relate to Carter. The relief that gives me as a parent is priceless.

Before leaving the event a guest pulled me aside to introduce himself. He starts by telling me he had the privlege of sitting with Carter at lunch and enjoyed hearing his stories. Wayne Penn, Biomedical/Mechanical Engineer for DEKA Research & Development Corporation along with a few clients of Next Step including a man who uses a Deka Arm, http://nextstepoandp.com/PDFs/Apr10_EDGE-What%27sNext-DARPA.pdf, listened to Carter describe his first time at the ocean. He tells them that he didn't like the little waves because they were boring, he liked the big waves because they were fun to boogie board on! Hearing Wayne recount his lunch with Carter filled me with such joy and happiness. Carter has already made such and impression on thousands of people and he is only 4 1/2 years old, this is truely a blessing!

Being a part of this community of people has changed our family forever. The amazing people we meet along the way is what gives our family Hope and Strength. Over the past couple of months our family has experienced so much happiness that all the dark parts seem to fade. Truely, Carter is our SunShine on a Rainy Day!

Thursday, December 17, 2009

Great Friends are Great Treasures!

Carter celebrated his 4th Birthday this week! So many milestones have been reached in the past 4 years by Carter it is amazing to look back and reflect on the day he was born. Just a little over 6 lbs when he was born I saw a fragile baby with many obstacles ahead of him. In the past 4 years he has become a brave boy that handles his unique life with smile that brightens anyones day!

The night before Carters Birthday we talked about how he was turning 4 and did some practice counting for his big day. As soon as he realized he could not count to 4 on his fingers he blurted out "Mommy I wish my fingers weren't stuck together, maybe a wizard will fix them for my Birthday"! Outta the mouths of babes as I always say!

This wish made Mike and I think a lot about how he will count growing up with only 3 fingers and 4 toes. Not that we haven't thought about this before, but now it was more prevalent on his 4th Birthday. We always joked he could take off his right shoe and use his 4 toes to count!

The morning of Carters Birthday, Mike, Chase and I woke him up by singing Happy Birthday in bed. As soon as his eyes opened he started to look at his hand and asked us to turn the light on. Once the light was on he looked again and said "Aww I didn't get my wish". This broke our hearts.

Over the past couple of days our friends and family have given us many ideas on how Carter can count higher than 3 on his fingers. My favorite idea was having his friends and family help him count by lending him their fingers to add to his. It is just so priceless to us having moral support from our friends and family.

This morning I brought cupcakes into Carters school for his Birthday. When I arrived all the children where playing except for Carter and his best buddy Noah. They were at the table with the teacher making something. I let them continue what they were doing and just sat back and watched. Noahs hand was copied on a piece of blue construction paper and Carter was holding a green birthday crown he had made. The teacher cut out Noahs hand for the boys and attached it to Carters Birthday Hat. You see, Noah lent Carter his hand for his hat so that it showed he was 4 years old. Atop Carters hat was Noahs little hand with the thumb down showing his 4 fingers!

Today Noah made Carters wish come true by being his "counting wizard"!

Thank You Noah for standing by your buddy and helping him out when he needed you. You are a very special boy with a very special heart!

I will never forget what Noah did for Carter and I will never forget how lucky we are to have this family in our lives!

Great Friends are the Greatest Treasures!




Tuesday, October 20, 2009

Remembering my Grandfather

Today my father and I spent some very special time together remembering a great Man. I took Dad to Veteran's Memorial Park to see my grandfather's name on the Memorial. We walked around the park checking out the memorial. I brought paper and pencils and did some rubbings of my Grandpa's name. After we spent some time at the park we went for ice creams at Ben and Jerry's. I felt like a little girl again. Not only did it make me feel close to my Grandpa but it made me feel very close to my Dad again. With the hussle and bussle of everyday it has been hard to be Daddy's little girl. I know now that time doesn't change anything I WILL ALWAYS BE DADDYS LITTLE GIRL, and I will cherish today forever! I love you Daddin!





Wednesday, October 14, 2009

Happy Birthday Dad!

October 15th is my Dad's Birthday! Had a nice celebration with my brother and his family this past Sunday night. Can't wait until my other brother comes to visit in November.

I love you Daddin!

Tuesday, October 13, 2009

Happy Heart

It's almost like he is dancing on cloud 9 with his new leggy. Carter has been so excited for today and it finally came! Again, I can not express enough how much we love the work that Next Step does for Carter. Scott and Dave (all the Daves) put their heart into making Carter's leg and it shows with the beautiful finished product. Since he got home he has been running around the house and dancing around. He is beyond happy right now.

Just want to add a note that "The Daves" put Spongebob and Patrick on the front like "brothers". I love it! That's using your noggins!

My heart is swelled with happiness!







Wednesday, September 9, 2009

A Smile A Day

If there is one thing I have learned over the past 5 years is that change is inevitable. Children are forever changing and before you blink they change again. With all of the physical changes Carter goes through comes prosthetic changes. Recently we discovered that Carter's gait issues were due to some weakness in his thigh muscle and tightness in his hip flexors. The gang at Next Step made many changes to his alignment but with each change came a new gait issue. There was no happy medium to be found. So Next Step did what they do best COLLABORATE! You know the saying "2 heads are better than 1"? Well in our case we have all the brains at Next Step collaborating to come up with a solution that will help Carter with his gait and stregthening his leg muscles. While we were in NY Next Step made a tie corset with knee joints to attach to Carters exsisting prosthetic to provide knee stability. I was confident it would make a tremendous difference for Carter. However, I still feel pain for my son having to deal with more equiptment just to be able to walk, run and play. Today Carters tie corset was added to his prosthetic and the instant change in his gait was amazing. As the day went on his gait continued to improve. The tie corset does restrict him a little bit but he is already finding ways around it. I say that like IM suprised, which I shouldn't be. Carter always finds a way to do what he wants. Tomorrow will be Carters 1st day of school and I will be going with him to see how he manages in his new environment with his new equiptment. I have no doubt he will have a great 1st day at school.

Carter doesn't know anything but happiness! His smile keeps me going everyday!

Thank You everyone at Next Step for all that you do for our family!





Sunday, September 6, 2009

Olcott Beach NY Lake Ontario


Im rather fond of this family picture.
Mike set the camera on the timer. One take and I was happy.
I love my family!

Thursday, August 27, 2009

Summer Fun July 2009

ENJOYING THE OUTDOORS WITH CHASE AND CARTER.






Wednesday, August 26, 2009

Put on a Happy Face

That is all I feel I can do sometimes is put on a happy face! Im trying very hard to accept and understand why my boys have these medical obstacles. Just when life seems to get back to "normal" another obstacle arises. After spending my day at the doctors office and at prosthetics Im feeling very battered!

Is it possible that there is a reason for the card my boys were dealt? I ask myself this every day but after almost 4 years I still have not found the answer. Until a month ago I felt I had accepted the card that was dealt to Carter. Now Im wondering why both of my boys have to deal with these series of unfortunate events. Some people believe that my children are so special God chose them to bear these burdens. Some wonder if it is all just based on scientific luck of the draw. Most say "everything happens for a reason". Well Im searching really hard for the reason and the answers to all of my questions. Over the past 4 years my faith has been beat up and tossed into the trash. So once you loose your faith where do you turn?

Monday, August 24, 2009

Facebook taking over.....

I have seriously negelected my blog. Apparently I let Facebook take over. I can not let this happen. I have put too much time and effort into this blog. Does anyone still look at it?